Tongue and Lip Ties and Their Link to
Ehlers-Danlos Syndrome (EDS)
Introduction Tongue and lip ties, while common, often go hand-in-hand with certain connective tissue disorders, including hypermobile Ehlers-Danlos Syndrome (hEDS). This article explores the connection between ankyloglossia (tongue tie) and hEDS, a condition characterized by joint hypermobility and other systemic effects.
What Is Ehlers-Danlos Syndrome (EDS)?
- Overview: EDS is a group of hereditary connective tissue disorders affecting the skin, joints, and blood vessels.
- Hypermobile EDS (hEDS): The most common form of EDS, hEDS impacts tissue integrity and elasticity, leading to joint hypermobility and other manifestations.
The Connection Between Tongue/Lip Ties and EDS
- Genetic Link: There’s evidence that tongue and lip ties are more common in families with connective tissue disorders like hEDS. Some individuals with hEDS have thicker or tighter frenula that restrict tongue and lip movement.
- Hypermobile Tongues: Interestingly, some people with hEDS may experience the opposite — a highly mobile tongue due to an absent or loose frenulum.
- Structural Impacts: In hEDS, tissue anomalies can lead to a higher incidence of tongue and lip ties, impacting oral health, feeding, and, as discussed earlier, airway health.
Diagnosis and Treatment
- Diagnostics: Diagnosing a tongue or lip tie in people with hEDS can be challenging, as connective tissue disorders complicate standard assessments.
- Treatment Options: Myofunctional therapy, which strengthens oral muscles, is often helpful for people with hEDS. Laser frenectomy is also an option, though careful consideration is needed due to the unique tissue structure in hEDS.
Awareness of the link between EDS and tongue/lip ties can lead to more effective management and treatment options. If you or a loved one has hEDS and struggles with oral restrictions, Dr. Alicia McCubbins specializes in EDS, hypermobility, and the complexities of connective tissue disorders and oral anatomy. To learn more about how she can help, schedule a free call with a care coordinator by clicking here.